Chronic Sacroiliitis

Chronic Sacroiliitis:
http://www.mayoclinic.com/health/sacroiliitis/DS00726 a good description of what ails me.

Definition
By Mayo Clinic staff
Illustration showing sacroiliac joints Sacroiliac joints

Sacroiliitis (sa-kro-il-ee-EYE-tis) is an inflammation of one or both of your sacroiliac joints, which connect your lower spine and pelvis. Sacroiliitis can cause pain in your buttocks or lower back, and may even extend down one or both legs. The pain associated with sacroiliitis is often aggravated by prolonged standing or by stair climbing.

Sacroiliitis has been linked to a group of diseases called spondyloarthropathies, which cause inflammatory arthritis of the spine. Sacroiliitis can be difficult to diagnose, because it may be mistaken for other causes of low back pain. Treatment of sacroiliitis may involve a combination of rest, physical therapy and medications.

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I re-injured myself at a new job while being trained in in 2004. My Ex told me about M.A.P.S. (http://www.painphysicians.com/): Medically Advanced Pain Specialists. They use Epidural injections under fluoroscope. "During fluoroscopy, the patient is positioned between an x-ray source and a fluorescent screen. The live images generated by the fluoroscope allow the physician to visualize and target the suspected physical generators of pain within the body."

I went to see them from 2006 to 2008. They discharged me after having a Radio-frequency, which in layman's terms mean they heated up the nerves in my spine that weave in and out of the facet joints (which are connected to the spine or vertebra), and said come back when it hurts again. They said the nerves would either grow back in a new place, or in the same place.

There is a certain point on my low low back, that if anyone touches it, I spasm in pain.

In 2006, I was sent to see a Dr Jeff Kotulski, who diagnosed what my pain points were. He was the only one who answered me, and I'd been to and sent away from the Mayo Clinic. I was told "live with it".

I was so relieved! I thought I had invented a new pain that no one could identify and so no one could help me. I also have Muscle spasms in my low low back and now in my upper thighs if I stand too long.

Chronic Sacroiliitis. (http://www.mayoclinic.com/health/sacroiliitis/DS00726) linked to spondyloarthropathies which is what Dr Snow of Mayo said I had, which cause inflammatory arthritis of the spine. Sacroiliitis can be difficult to diagnose because it may be mistaken for other causes of low back pain.
Treatment of sacroiliitis may involve a combination of rest, physical therapy and medications.
Symptoms of Sacroiliitis:
The pain associated with sacroiliitis most commonly occurs in the buttocks and lower back. It can also affect the legs, groin and even the feet. Sacroiliitis pain can be aggravated by:

* Prolonged standing
* Bearing weight more on one leg than the other
* Stair climbing
* Running
* Large strides
* Extreme postures

All I know is, and this is important:
my Si joint begins to tickle on the inside, not hurt. it becomes like 'I have to crack' like a dull feeling, and it tickles but its on the inside of the muscle, next to the bones. Then, I lay on the floor and do some stretching and rolling with knees bent, and slowly roll the knees to each side, with my back straight on the floor. This rolling makes me 'crack' but not really; its moving the muscles in my buttock (left side) causing it to 'scratch' the tickle...but not really. its just stretching that muscle that tickles.
I do this rolling for several minutes. I roll very very slowly because the rolling to pushing that muscle into the Arthritis on the bone that is causing the tickle on the muscle...it hurts even to lay flat on the floor. but because the tickle is enough to send me flying out a window because I can't scratch the itch, the rolling is enough to satisfy me, thinking I'm doing SOMETHING to try to ease this.
Then, I stand up after 5-10 mins of rolling. the tickling has now subsided and moved onto pain. Now it hurts. and I have to decide if it hurts enough to take the pain meds or will Aleve be enough? I usually end up taking the pain meds and getting an Ice pack and numbing the pain area. The tickling does return but because of the ice pack, its bearable.

There's my story.